Hackathon for Rare Diseases and Cancers

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The European Electronic Health Record Exchange Format (EEHRxF) is now available for testing! Share your approach with us and participate to our exciting proof of concept event! 

In the context of the X-eHealth – Exchanging Electronic Health Records in a common framework, a European funded project, we invite professionals, researchers, members of European Reference Networks (ERN) and eHealth Agencies, vendors, students and any stakeholder who are interested in the healthcare domain to form teams and participate in the X-eHealth Hackathon for Rare Diseases and Cancers. The hackathon aims to showcase state of the art applications in the area of rare diseases and cancers management focusing on the efficient exchange of electronic health records by reusing the specifications developed by the X-eHealth project, facilitating the link to the specific European Reference Network (ERN) resources (e.g. ERN Guidelines) and the connection to related ERN Registries.

On this basis and building upon the already in place Patient Summary, X-eHealth purpose is to develop the foundations for a common framework for medical imaging, discharge letters, laboratory results and rare diseases to flow both alongside citizens care pathway and across health entities between EU Member States and Neighbour Countries.

Taking a patient-centric approach, this work will contribute towards addressing local, national, cross-border/international aspects along with professional collaboration with patients, multi-lingualism, differences in terminology, and other well-known organizational barriers.

Note: The scope of the Hackathon is to validate and test the X-eHealth specification under development with proof of concepts that target the domain of rare diseases and cancers. Nevertheless, the organizers reserve the right to ask for clarifications, or even reject the participation of any team that is not within the scope of this hackathon.

Indicative Standard Specifications/Documents to be used

Description of the clinical scenario: use cases

Important dates

Organizing committee: event under the auspice of the X-eHealth Project

If you want to have calendar invite or if you have another subject, please send an email to:

Documents | Webinars

Hackathon Q&A and Training Session | September 27, 2022

Official Event | October 4, 2022